Belated Update

I know it’s been so long since we’ve updated this blog. A lot of things have changed, including a new addition to the family! We’re now a family of 5!

But some things also have not changed and we’re very grateful for that! We’re still very active in the epilepsy community and Kaleb has remained seizure-free and also medication-free. We continue to support research for a cure for epilepsy and volunteer for efforts in supporting those with epilepsy as well.

Kaleb is still at his county preschool in a special ed inclusion program for kids with orthopedic needs. He will be having his IEP in a couple months and we’ll see what the next steps are. He’s doing really well and is learning to read too! He still receives PT, OT, speech, hippotherapy, aquatics and we also added gymnastics this year.

Life is busy but we’ll try to update this blog at least annually so that those who are going through the infantile spasms journey can see how Kaleb is doing in the years that follow the IS diagnosis.

In the meantime, wishing you and yours a very Merry Christmas, the happiest holidays, and a wonderful new year!

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